PAYTEN ANGEL HOPE CARSTENS
I was born 3 weeks early on feb 23 2012 with a lot of health problems I had hydrops, which is an excessive accumulation of serious fluid in the cavities of my body. I was also born with a fetal plural effusion, which is an abnormal accumulation of fluid in the chest cavity. I had fluid on both sides and as the fluid increased it compressed other structures in my chest like my lungs and heart. In other words, it pushes my heart to one side of my body. I was in the hospital for almost a month when I was born. I constantly had tubes everywhere on my body to drain the fluid from my lungs. When I was finally released from the hospital to go home my parents were happy because they were able to hold me and love me and spend all the time in the world with me. A little time went by and my mom and dad took me for my routine check up to see if everything was going great after my long stay in the hospital. And to find out the Doctors listened to my heart and they heart an (heart murmur). They ran some test on me and they found out that I have a hole in my heart called an (Atrial Septal Defect) that I was born with and never told my parents about this til a few months later the doctor told my parents I had the large hole in my heart between the left and right atrial. It causes blood from the left atrium to flow into the right atrium and as it is a large hole it is causing large amounts of blood to flow from the left to the right atrium causing the right atrium to swell to hold the extra blood. Mine was so large it required surgical correction. This surgery is my only hope of living a normal life. I then also had been diagnosed with aortic pulmonary valve stenosis. The valve between the left ventrical and the aorta is narrowed creating a smaller space though which blood passes into the aorta. This narrowing means that my heart needs additional pressure to pump blood out of my heart into the arota. this extra work for the heart may cause my heart muscle to be damaged if the condition isn't fixed. The doctor has to repair the valves to allow more blood to travel though which will help prevent heart muscle damage. I also recently was diagnosed with hydrocephalus which is an accumulation of fluid on the brain. I was in the hospital for 5 days specifically for the reason of my head being enlarged. I constantly was vomiting and pushing my head on the floor and I was irritable I wasn't eating I was running a fever and I lost some of my motor functions and I kept putting my hand up to my head because of the pain caused by pressure on my brain. The doctors did a vp shunt system in which they had to shave my head to cut into the top of my head twice and run a line from the ventricles in my brain to the peritoneal cavity which is the space in my abdomen where my digestive organs are located. The tip of the catheter rests in the cavity near the loops of the intestine and bowls but not inside them. I soon have to go see a disease specialist because they believe that I have celiac disease which is a chronic digestive disorder in which damage to the lining of the small intestine leads to malabsorption of minerals and nutrients because my Immunoglobulin A is los and it cause problems with growth. I am 2 years old now and only weigh in 18 pounds now. If Im not treated this can result in short stature as an adult. So this is my prognosis so far between the time I was born in 2012 to 2013 and now is 2014 and I have had open heart surgery and now I have spinal fluid on my skull and a torso in the neck and scoliosis which is a curved spine which is dangerous at this time for me and they want to wait til I hit puberty unless it gets worse but they are keeping an eye on me right now and I have been waking up thru the night screaming a few times and it may seem like I have a lot wrong with me but Im a fighter. All this has happened to me since birth and I will continue to fight until I win the battle. My mom and dad along with an older brother and older sister and the rest of my family take great care of me but I need your help.