Member of Ehlers-Danlos National Foundation
About Ehab Alkuttub
A resident of New York City, Ehab Alkuttub holds a master’s degree in international affairs from Columbia University. He is a member of the Ehlers-Danlos National Foundation, a nonprofit group that aims to raise awareness and provide resources for individuals with the connective tissue disorder that bears this name. Established in 1985, the organization now has more than 2,000 members. Ehab Alkuttub also supports research specifically related to the vascular type of Ehlers-Danlos syndrome.
Ehlers-Danlos syndrome-vascular type is generally regarded as the most serious version of the condition and is characterized by thin and translucent skin. Frequently, individuals with the disorder are born with a clubfoot. The condition carries the risk of joint hypermobility in the digits, muscle and tendon rupture, and early-onset varicose veins.
In addition to his support of the Ehlers-Danlos National Foundation, Ehab Alkuttub is involved with a number of support groups for children living with the condition. When not working or engaging in philanthropy, he enjoys classical music and following soccer.