IIH Awareness

Idiopathic Intracranial Hypertension

IIH can affect ANYONE at ANYTIME

Everyday people affected by Idiopathic Intracranial Hypertension, suffer with debilitating symptoms and chronic headaches. It can affect ANYONE of ANY age, gender, body type, and ANY ethnic group. It primarily starts with an unbearable headache that never goes away, neck stiffness, balance and memory problems as well as other worrying symptoms.
IIH is often misdiagnosed as Migraine, Brain Tumour, Depression, ME/CFS and many other conditions. On average it can take up to 3 years for it to be diagnosed, and is usually found after visual problems occur. Visual problems can lead to either partial or full vision loss, when surgery is then necessary to halt the process.

It is RARE and it is INCURABLE!

To the naked eye a sufferer looks well, but are actually too sick to do everyday tasks. The headache is often so severe that they experience depression and anxiety. In ALL cases they feel isolated and misunderstood.

The I Have IIH Foundation gives support to all those who are affected by IIH, and provides a voice to the many sufferers who’s lives have been affected by this condition. We provide practical help, booklets, advice and tools to help make it easier to live with IIH. We provide online support, so that they can connect to others and find comfort and share experiences, especially about their medication and surgery.

The impact this condition has is not only a physical one, but an emotional and financial one too, and can affect a whole family.

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